Thursday, September 27, 2012

Abundantly Overflowing!

It's been a whirlwind of a month with activities abundantly overflowing on our schedule.  Here are some highlights!

I had a PR (personal record) in the 5k race recently.  My speed improved to a finish time of 51:38!  The August 5k race finish time was 56:50 so I'm happy my training proved beneficial.  It was a beautiful morning that we shared with our friends.  Thanks for joining us!



 We upgraded from a pair...
 

 ...to a pack!
We added Indi to our family as my early birthday gift.  Indi is now 12 weeks old and was born July 3, 2012.  Her official name is Declaration of Independence, aka Indi.  I've wanted a German Shepherd for a long time.  Ma always wanted a Yorkie but never got one.  The last time she mentioned wanting a Yorkie was about 1.5 years ago when she said, "I wish I had gotten a Yorkie."  I told her it wasn't too late to get one.  Ma never got her Yorkie, but that made me think about certain things in my life now that Ma is gone.  Why put off things on my Wish List?  I didn't want to find myself down the road regretting not getting a German Shepherd, hence the addition of Indi!

I've found that I'm able to squat down to clean up occasional puppy messes, get her leash on her, etc.  There was one incident I wasn't able to do anything.  It was chilly the other day and I wore exercise pants.  Indi must have thought I resembled a chew toy because she pounced on my leg and chomped on my ankle.  Obviously, I screamed as her teeth are razor sharp.  My scream startled Indi who let go of my ankle but my pant leg was stuck on her tooth as she was backing away from me.  My daughter was laughing hysterically because I couldn't bend over to get my pants out of Indi's mouth, but she managed to help me out and get my pants off Indi's tooth.  Glad I could be a source of entertainment for someone!  :)

In addition to racing and expanding our family, Lizzie, who is part of the Junior Olympic Archery program, has been busy with tournaments this month too.  She earned 1st place at the South Eastern 720 Part I tournament in the Bowman category.
Lizzie is third from the left, dark blue shirt
A much welcome cloud passed by
Lizzie at her target, third from left
Lizzie brings home the Gold!

Two weeks later, Lizzie earned 1st place in the Georgia State Tournament which makes her the 2012 Georgia State Champion in the Bowman category!  Pictures will be posted soon (still looking for the camera cable).  Lizzie's goal is to become a member of the Olympic Junior Dream Team in 2013.

And to round out the month of September, Lizzie was featured in the September issue of the WebMD magazine where she reviewed Michelle Obama's cookie recipe.  You can read the article here or pick up the magazine if you are in a doctor's office this month.

I've had quite a bit of muscle atrophy between my should blades despite doing PT exercises.  

Once I'm 1 year postop, I'll be released to do exercises on our weight machines.  There is a Postop Collage on my blog now (Aug 14, 2012 blog), just two more pix to post for October and November 2012 and then I'll be 1 year postop!  Wooo Hooo!  I still have a lot of numb areas across the middle of my back, upper left thigh, etc.  Praise God for a blessed recovery!





Saturday, August 25, 2012

Is It True, You Never Forget How to Ride a Bike?

Lizzie and I recently went to Nashville, TN to meet my new Achilles team.  Are you wondering, "Why in the world would Doreen go all the way to Nashville to walk with a group of people?"  Since there aren't any Achilles chapters in Georgia, the Nashville chapter graciously took me under their wing.  It was an especially exciting evening for the team as they received a special delivery straight from NYC.  Joe Traum (whose dad, Dick Traum, started Achilles 29 years ago) and Ellie Cox from the Achilles NYC headquarters drove 15 hours to deliver 3 handcycles to the Nashville chapter!  Handcycles are powered with your hands on pedals located near your chest while your legs and feet are secured onto the bike near the front wheel in addition to your torso being strapped into the seat. 

Invacare XLT Handcycle
  
I was paired up with John who was my guide.  It was a delight chatting with him during my trek around the course.  I shared with John how Janet in the NYC office put a bug in my ear about doing the NYC Marathon.  I'd never thought of that before and asked Janet do people actually walk the race?  She explained that the course is officially open 12 hours but there are some people who take much longer but ultimately finish.  Achilles members are guaranteed a slot in this race.  Zoe Koplowski is a member who has walked and finished the race for the past 22+ years and is an incredible inspiration!

While chatting with John, I explained that I have two thoughts about me doing the 2014 NYC Marathon and that one of them (heck, who knows... maybe both?) will play out in the future.  The initial idea is to walk the NYC Marathon which if I train at a slower pace than what I'm currently walking to build endurance, I can potentially finish the race in 9 hours (starting time is 6a for Achilles members).  Then a new idea popped into my head when I said to John, "After seeing the handcycles tonight, wouldn't biking the marathon be faster than walking?"  Hmmm, now that's a concept! John immediately asked if I wanted to try one of the bikes when we were done walking and I was suddenly very excited at the idea of getting onto a bike.  

So, how does a person with a fully fused spine with a sacrum anchored into the pelvis get down onto a handcycle?  VERY CAREFULLY!  There were a couple of physical therapists in the team and they, along with Joe Traum, were very patient and kind in helping me onto the bike.  
Joe, Will and Liz helping me onto bike.

The bike pictured above had the highest seat of the three bikes, about 14" off the ground.  I was able to straddle the seat and then with the help of Liv and Will who braced me under my arms, I was able to slowly and carefully lower down onto the seat.  I was shocked!

The seat was surprisingly comfortable on my lower back and it felt good to have my legs stretched out.  Joe explained the details of the bike and told me to slowly turn the front wheel with my hands on the pedals; it was an odd sensation.  Joe also explained how this particular bike doesn't involve using your entire body to turn as compared to other handcycles that are lower to the ground.  While he did say, "You'll never win a race on this bike," because of the higher upright position of the seat, this bike will allow me to finish a race which is my goal.

While I didn't actually cycle around on the bike this time (I didn't want to over do it after having just walked almost 3 miles), I do have plans to take it out for a spin the next time we are in Nashville.  I look forward to talking with Dr. Lenke to see if a handcycle will possibly help rebuild the muscle that atrophied between my shoulder blades.

Pictured below are Joe Traum, Will, me, John, and Sarah who helped launch the Nashville chapter.  Thank you so much for such an inspirational evening!

It is such an interesting path I'm on during my recovery being almost 10 months postop.  It's as if I'm trying to make up for lost time after being unable to live my life leading up to the surgery being bedridden for most of my days.  I was definitely an observer of life last year, being a participant is so much more exhilarating!

Warmly,
Doreen


Tuesday, August 14, 2012

Post Op Collage

Here is my work in progress of preop pix through 9 months postop.  Oops!  Just realized I didn't take the 2 month postop January pic (heavily medicated at that point), the 8 month postop July pic (too busy living life while on a 3 week holiday) or the 11 month postop pic.

                                       Before Nov 2011   10 Days Postop       Nov 2011         Dec 2011
                                                                                Dec 2011  

3 Months Postop Feb 2012
4 Months Postop Mar 2012
           












5 Months Postop Apr 2012
6 Months Postop May 2012



















9 Months Postop August 2012


7 Months Postop June 2012

Yikes!  Didn't realize the muscle atrophy 
looked like this!


10 Months Postop September 2012



The grand finale - 12 Months Postop Nov 2012

Saturday, August 4, 2012

My First Race!

It's been an incredible 2 weeks since I made the decision to enter the Run for Wounded Warriors 5k (3 miles) race.  Even though Dr. Lenke advised I should never jog, I participated as a walker.  My daily walking routine is 5 miles (8k) but I break it up into 1.5 mile chunks throughout the day.  Last week I started walking 3 miles nonstop for a few days to prepare for today's big race.

My day started at 4:20a with the sound of pouring rain.  Hmm, what a way to start my racing journey.  I tried to go back to sleep until 5:30a, but I was too excited and couldn't sleep.  Jeremy snapped this pic of me at 5a.
Fortunately, the rain completely stopped by the time we arrived at the venue.  We lined up toward the back of the pack for the start of the race.  Jeremy and Lizzie let me set the pace for our little team (Team Bionica!) and I kept telling myself, "Slow and steady... be the tortoise." 

It was a great course with cool, cloudy weather.  Lizzie was eager to run so she broke ahead of us and ran ahead.  Coming into the 2 mile mark I started picking up a little speed and passed some people.  Lizzie made my day when I crossed the finish line and I heard her cheering for me!  This by the way, was my first race in my entire life!  That's all about to change.
Next steps?  I plan to walk in several more 5k races leading up to my new big goal: walk the Hope & Possibility 8k Race in NYC Central Park June 2013.  I discovered an incredible group Achilles Track Club which encourages disabled athletes to participate in mainstream running events.  I never thought of myself disabled (or an athlete for that matter), but apparently I fall under that umbrella and am now a member of the Achilles Club.  Achilles says that the term disability runs the gamut of wounded veterans, multiple sclerosis, blindness, recovering from surgery, diabetes, cancer patients and survivors, etc.

I'm also 9 months postop and here is the latest pic.
Once I'm 12 months postop, I'll create a collage of each month's postop pix to see a side-by-side comparison.

*Update: I had to share this silly pic Jeremy took of me after a glass of post-race wine.  Tried to cross my eyes, but...
 

It's been an incredible journey!  Praise God!


Monday, July 23, 2012

How I Maintained Exercises While on 3 Week Holiday


Phase I – Sebring & Cape Coral, FL
Day I started out with a road trip starting at 6:30a, stopping at 10a for breakfast and a brisk walk through the restaurant parking lot.  Next stop was 4.5 hours later for a quick shopping stop and lunch, walked about 2 miles.  Final stretch was 2 more hours in the car until our final destination of Sebring, FL.  Total time in car: 10 hours, I drove 5.5 hours, no pain, no need for pillows in the car.  I walked 1.5 miles this evening.

Day II was a busy day: church, out for breakfast, grocery shopping, pool, power nap, cooked dinner, walked my usual 3 miles that I normally do on Sundays.  I discovered I can do the backstroke in the pool; definitely woke up some sleeping muscles!


Day III included my usual 5 mile walking per day, upper body workout (I brought my dumb bells), more backstroke swimming at the pool, laundry, cooked dinner.

Day IV did my lunges and 5 miles of walking, cooked.

Day V walked 5 miles, upper body workout, walked for a couple of hours following my daughter and sister-in-law who did some fun 4th of July activities at the neighborhood clubhouse.  

Day VI relaxed in the pool, 5 miles of walking and lunges.  Thoroughly enjoying the evening storms that blew through.

Day VII drove to Cape Coral, FL so hubby and daughter could fish and then we house-hunted the area for a vacation home then returned to Sebring.  Total time in car: 10.5 hours, I drove 5 hours, no pain but very stiff at the end of the day.  This was a light day of walking, maybe 3 miles total.

Phase II – Orlando & Tampa, FL
Day VIII drove to Orlando and checked in at the condo which was only 1 hour away from Sebring.  Walked 5 miles and did upper body workout.  I was able to squat down to sit on the edge of the pool and dangle my legs into the pool this evening.

Day IX relaxed at the pool in the morning, walked 3 miles.  I discovered I could comfortably sit in a comfy chair and cross my legs while reading; NEVER thought I’d be able to do this postop.


Day X relaxed at the pool in the morning, walked 5 miles and did upper body workout.

Day XI spent 7 hours at Magic Kingdom, 1 hour at Downtown Disney, rode 6 rides, walked more than 5 miles, did lunges and am completely exhausted but not in pain, just a bit stiff.  My first ride was the People Mover which was a piece of cake.  Ride #2 was Winnie the Pooh.  There is a Tigger section which is rather bumpy but I simply sat upright so that my back wasn’t touching the back of the seat.  It was a really cute and fun ride.  Ride #3 was It’s a Small World and it was another easy ride to get into.  Ride #4 was the Haunted Mansion which would have been fine except for the chairs moving so fast and the employee rushing everyone to hop into the moving chairs.  I mis-judged the distance of the height of the seat because it was dark and ended up plopping down a tad bit hard onto the seat which tweaked my back for a bit.  Ride #5 wasn’t really a ride, Presidents Hall, but was a nice respite from the hot day.  Ride #6 was the Jungle Cruise and it was a bit odd stepping onto a moving boat but I was pretty comfortable.  I decided today that I will pass on the upcoming trip to Harry Potter World since 99% of the rides have a back warning.  It was wonderful to have such a busy day that didn’t end with me in bed with pain.  I haven’t had a day like this in over 10 years.  Life is great!


















Day XII relaxed at the pool, did upper body workout and walked 5 miles.

Day XIII while hubby and daughter enjoyed their day at Harry Potter World, I spent my day reading, walked 5 miles and did lunges.  Surprisingly, hubby and daughter came back by 1p because they were able to hit all the rides on their To-Do list and we hopped in the car for Tampa an 1.5 hour away.  We went to some of our fave spots and had tasty food.  It feels wonderful being spontaneous now as compared to pre-op where the pain prevented me from most activities.


Day XIV Everyone slept in, relaxed at the condo, did laundry, packed up and danced with hubby for the first time postop!  Walked 5 miles and did upper body workout.

Phase III – Ft. Lauderdale, FL
Day XV drove 3 hours to the east coast and checked into the condo for the “Girls Trip” of our last week in Florida.  Hubby had to fly back home to ATL for a few days before flying out to San Francisco so I drove him to the airport this afternoon.  Walked 5 miles and did lunges.

Day XVI went to the beach and discovered how wonderfully odd it felt to walk on soft, uneven sand!  My entire back was tingling because of the way I walked on the sand.  I didn’t walk far, about 1.5 miles and was completely exhausted in a great way this evening.  Enjoyed some time at the pool enjoying the ocean breeze. I walked a bit more at the condo for a total of about 3 miles.  I usually only walk about 3 miles on Sundays.


Day XVII Explored the neighborhood I grew up in and then walked 6 miles non-stop at a massive outlet mall which covers 7 miles.  I was quite tired by the time we got back to the condo and laid down for a bit before dinner.  Before we went to the mall I walked 1.5 miles at the condo so my total walking for the day was 7.5 miles along with lunges.

Day XVIII Drove along the coast, walked 5 miles and did upper body workout.

Day XIX Explored more of my old stomping grounds, walked 5 miles and did lunges.

Day XX Decided to head home early and drove 10.5 hours from Ft. Lauderdale to Atlanta (I drove the entire way since hubby had already went home for business).  Walked 1.5 miles before we hit the road and walked another 1.5 miles this evening.  Since today’s total walking was 3 miles, I will swap today’s workout for my normal Sunday routine of 3 miles.  This means, on this coming Sunday, I’ll walk 5 miles and do lunges.

I covered A LOT of ground with walking and driving on this holiday which will be great preparation for our Paris trip.  I never over did my exercises because there was never any pain, just occasional stiffness and there was no need for even a Tylenol.  This has been such a remarkable journey.  This weekend I was able to vacuum the entire house for the first time since hiring a cleaning lady a year ago.  God has abundantly blessed me and I am humbled by His generosity!

Tuesday, May 29, 2012

Awesome Weekend!

I had a fantastic weekend: great time with my in-laws and showing them fun spots around Atlanta, went swimming for the first time postop, sat on lounge chair, went to the movies, etc.

When I saw Dr. Lenke a couple of weeks ago, he said that if I have access to a pool, swimming will be great exercise.  Our neighborhood pool opened this weekend and I was excited to get into it.  It felt really weird though.  I held onto the edge of the pool, slowly pushed my torso away from the edge and slowly kicked my legs.  What surprised me the most was how sore my shoulders were the next morning!

I ran into Dr. Lenke and his nurse, Kelly, in the hallway on my way to his office.  Kelly gave me a big hug and said to Dr. Lenke, "Doesn't she look great?!"  Dr. Lenke smiled big and said, "She does and she's taller than me now!"  I was out of Lenke's office in less than one hour.  Note to self: schedule first appointment of the day on future appointments.  Dr. Lenke didn't see fusion yet on my xray which appears as cloudy areas around the hardware.  He said that fusion starts to appear on xrays around 6 - 9 months post op and that it's just a little too early to see it in me.  He isn't concerned about non-fusion since my hardware is still in the right position and I feel so good.  I can increase my workout weights slightly and start bending a bit. 

Going through airport security was a bit interesting.  I printed a TSA Hidden Disability Card
http://www.tsa.gov/assets/pdf/disability_notification_cards.pdf  in hopes that there wouldn't be any drama going through security.  I've read how some scoli patients don't set off alarms at airports while others do.  Jeremy suggested I try going through without mentioning my hardware and not showing the TSA card just to see if I set off alarms.  Unfortunately, the alarms went off which meant I had to have a pat down despite  showing the TSA card.  The Atlanta agent was nice and was concerned about not hurting me.  She said that on my flight home, show my TSA card first and ask to be screened in the special machine to elliminiate a pat down.  I did what she said in St. Louis, but after I stepped out of the special screening machine, I heard a voice on a walkie talkie, "Anomaly in the torso."  The St. Louis agent gave me a partial pat down of my back only, despite me showing the TSA card multiple times.  One of these times, I look forward to a pat-down-free experience in the future.

Warmly,
Doreen



Post Op Exercises

I've heard a lot of folks who are planning to have scoli surgery say they wish they could see how someone fused to sacrum looks like when they move.  My daughter filmed me doing my post op exercises so hopefully this will show people what is possible after surgery.  As of today, I am 6 months 2 weeks post op and I wasn't allowed to do any exercises, except walking which started on the day after my surgery, until I was 3 months post op.

I am in no way recommending any exercise for anyone as I am not a professional physical therapist; just sharing what works for me.  If you have questions about post op exercises, talk with your surgeon.

Enjoy!

One Leg Step Up - prescribed by Dr. Lenke's physical therapist:

Log Rolling - prescribed by Dr. Lenke PRE-OP.  Most every scoli surgery patient will need to learn log rolling in order to get in/out of bed correctly to keep the spine straight.  Patients should learn how to log roll before surgery:


Bicep Curls - prescribed by Dr. Lenke's physical therapist.  I used to do bicep curls preop with 20 pound dumbbells, but have been using 5 pound dumbbells since the surgery.  Dr. Lenke said I can increase my weight to 10 pound dumbbells:



Skull Crusher - NOT prescribed by Dr. Lenke but an exercise I used to do preop.  This exercise gives my upper back and shoulders a really nice stretch:


Triceps - NOT prescribed by Dr. Lenke but an exercise I used to do preop:


Ceiling Press - prescribed by Dr. Lenke's physical therapist:


Flyes - prescribed by Dr. Lenke's physical therapist but an exercise I used to do preop:


Tricep Curls - prescribed by Dr. Lenke's physical therapist:


Overhead Press - NOT prescribed by Dr. Lenke but an exercise I used to do preop:



Modified Lunges - prescribed by Dr. Lenke's physical therapist.  After seeing this video I'm shocked at how low I'm going with my knee.  I definitely wasn't going this low when I started doing this exercise a few months ago: